News and events

Steve Moran’s “Premiership Pedalathon 2012” Campaign

For a few days in April former Reading and England striker Steve Moran might have been a little saddle sore and for a very good reason.He took up the challenge to cycle around all 20 Premier League grounds plus Wembley Stadium and the clubs he played for namely Reading, Southampton, Leicester City, Exeter City, and Hull City.The reason in undertaking such a marathon was very close to home.Steve takes up the story, and says, “Connor, the 12 year old son of my partner Hayley, is an extremely bright and happy young boy who sings and laughs from waking to bed-time. When Connor was three and a half he was diagnosed with ‘Duchenne Muscular Dystrophy’ (DMD). This ‘Duchenne’ type of MD is rare, devastatingly severe and only affects boys! Statistics suggest that only 100 boys are born with this condition each year. Recent clinical trials have provided some degree of optimism for potential treatments for Duchenne sufferers and are currently ongoing. 
Connor knows that he has ‘poorly muscles’ and in his little world of music, Star Wars, Harry Potter, Dr Who and everything general knowledge he copes so courageously with a smile and a tune, seldom complaining about the cruel hand that has been dealt him.
Connor is still so excited about the arrival of his new little brother Harvey born in May 2011 and is already planning games, singing & dancing shows, whilst mapping out the future of his young sibling, providing yet another escape and distraction from the physical shortcomings that are now sadly a daily part of his little life.
 You can still make a donation.  To see how visit Steve’s website

20 April 2012

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